Grace for Special Needs Families: Day One

Grace for Special Needs Families: Day One

grace to find rest

READ: Matthew 6:25-34

We recently transitioned our four-year-old daughter, who is vent dependent at night, to her own “big girl” room, complete with video and sound monitors so that I could see and know everything she was doing from the peace of my own bedroom. Until now she has been in our bedroom, her crib and all her machines and monitors set up within feet of our bed. My husband assured me more than once that he was getting all the monitors in place so that I wouldn’t miss a thing, but those first few nights my daughter felt miles away.

The whole reason we transitioned her to her own room was so that I could finally get better rest. I wasn’t sleeping at night. Anxiety would keep me up. Alarms would keep me up. An ornery child pulling her tubes would keep me up. But now that she’s mostly sleeping through the night, it was time to make this transition, and important for my own rest.

When school starts soon and in-home therapies get scheduled, I get anxious about who her teachers will be. Will they know how to work with her? Will they be able to understand her? Will they bring germs into our home? At doctor appointments I worry about test results, holding her down for labs, and if I packed everything needed for our day away. The list of worries with a medically fragile child never ends.

In Matthew chapter six we’re reminded that God clothed even the lilies of the valley and the birds of the air. As Jesus preached this segment in the Sermon on the Mount, He emphasized that God provides everything we need, therefore we should not worry about tomorrow because tomorrow has its own worries. Instead, rest in today knowing that He will meet our every need. “Therefore don’t worry about tomorrow, because tomorrow will worry about itself. Each day has enough trouble of its own,” Matthew 6:34 (HCSB).

I’m learning to give myself the grace to know that I’m doing the best I can for our children. And then rest in the knowledge that God will meet us right where we’re at and provide exactly what we need, whether that’s wisdom for our daughter’s set-up in her new room, or patience while waiting on a test.

“But seek first the kingdom of God and His righteousness, and all these things will be provided for you,” Matthew 6:33 (HCSB). 

Acknowledging Him first, then giving ourselves the grace to rest in knowing He hears us and will be our help means that we can rest our weary minds and enable us to spend the time we would be worrying into quality time playing and watching our little ones grow.


1.   What worries are keeping you up at night? Bring them to the Lord and ask for His guidance. Philippians 4:6-7, “ not be anxious about anything, but in everything by prayer and supplication with thanksgiving let your requests be made known to God. And the peace of God, which surpasses all understanding, will guard your hearts and your minds in Christ Jesus.”

2.  Make a list of some of the anxieties you used to have, and how God met those worries and worked things out. Remembering the many ways God has relieved our anxious minds and allowed us rest will help us in knowing He is faithful to do this in the future. 


Grace for Special Needs Families: Day Two

Grace for Special Needs Families: Day Two

Mom Up Day Seven

Mom Up Day Seven